Prader willi awareness month

So May was prader willi awareness month which I intended on hitting full force…and well this fell on its arse a little

But I’m ok with that

First the first time in months and months I’ve been able to lift my head and just get on with family life. We’ve had appointments and what not still but I’ve been able to just enjoy the three of us. It’s crazy to think that in the 19 months Oliver’s been around this is the first time this has actually happened but I’m in a good place!


Positives that we can share that have happened. We can now pull ourselves up. It’s a completely unconventional way but that’s how we roll in our house! Why do everything the ‘normal’ way…that’s boring!

We now have the fastest commando crawler I’ve come across. Getting from the play room to the kitchen in the blink of an eye. We can finally sit ourselves up unaided (I genuinely never even realised this had happened until I started noticing him sat up everywhere and spied on him)

We are starting to sign and gesture way more. This is making life so much easier for us. I don’t know what we’d do without the signing (well I do, we’d have a much more agitated child)

My personal favourite- arms up and grabby hands because he wants to be picked up. However this has also caused some heart ache as he will also go to anyone, and I mean anyone. He will throw his arms up to be cuddled by people he’s never even met, we will have to keep on with the stranger danger chat 😉

He dishes out kisses now. Especially to cuddly toys and it’s so cute. He loves to cuddle and he knows when he wants to cuddle and there’s no escaping (another favourite of mine)

A shout out to those who embraced go orange on the 25th with very very short notice, I didn’t get sent photos from everyone, some where snapchats but it never fails to remind me how far from alone we are in everything that is going on. The improvisation from some people made me howl. Oliver doesn’t have just Mike, myself and Roo as cheerleaders…he has our family and friends right there with us! We wouldn’t be as on top of things as we are without you

See you next year awareness month! Next time there will be much more awareness spread

2 thoughts on “Prader willi awareness month

    1. Thanks Em maybe next year you could share some of my posts when I go on my awareness month post craze?! Or wear orange on the 25th May?! Next year I plan on trying to get more people involved in the orange clothing! 😘😘 Xxxx


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